Yesterday

Yesterday was a pretty good day.

Kallyn's Cardiology appt went well. She and I really liked the Dr. He explained things well and said he see's 4-5 teenage girls a wk w/her symptoms. It's sort of a common thing. He gave us some website info for Dysautomonia and Postural Orthostatic Tachycardia Syndrome (POTS). Which is basically the Autonomic Nervous System not working correctly. So great, because RSD is the Sympathetic Nervous system not working correctly - so basically her whole Fbleeping Nervous System is screwed up. She can help it a bit w/diet change and lessen the attacks w/how she handles them. They did an EKG and Echogram as well and all looked good.

Then she had an appt w/her counselor that she was not looking forward to. She wanted me to come in w/her but her counselor would not let her. Next week is the last one w/this counselor and then she is getting referred to a counselor outside of Children's. Aging out of Children's they call it.

Then there was another appointment - a final appointment for something we've been dealing with and it went the best possible route it could go, so that was SO WONDERFUL!! Instead of being there for an hour or maybe 2, we where there for 3 1/2, so that was not so wonderful.

It was a verrry long day. We left the house at 7:00 and got home at 4:30 - after running all over the place.

Oh, and except for 1 snickerdoodle cookie on Monday (Children's Hospital has THEEEE best Snickerdoodles) - I have gone 13 days without Gluten/Wheat!!