Doctors

Yes, I went to the Rheumatologist on 9/30 and the Neurologist on 10/06 and have not blogged about it other than little FB status updates. I have no idea why other than I just feel myself staying away from the computer. Sort of withdrawing away from everyone. I have been really too busy at work to be on the internet and at home somehow our d-link dropped away and I can't figure out how to reconnect it so I have just been reading and watching TV (there are a lot of good new shows!). It is all I can do to go to work and then want to go home and crawl into bed. I have a heating pad mattress topper that feels soooo good. Then the weekend comes and I go to Punker's soccer game and can't seem to get myself to do much more. I am just SO exhausted. Mentally and physically. I argue w/myself all weekend about needing to get stuff done and my body wins.

It is hard to understand unless you have Fibromyalgia how frustrating it really is. I like to do laundry because you can put a load in the washer and dryer and feel a little productive. "I am doing laundry." I can proclaim as I climb back in bed. I folded towels with tears in my eyes as my shoulders were killing me and felt weighted down with lead. Sorry to be so depressing. Lets get on with the Dr appts as they are a bit more chipper.

9/30 - Dr Patrick Wood is a Rheumatologist that specializes in Fibromyalgia. He is a former professor at Louisianna State U, he worked at the McGill Pain Clinic and is a scientific advisor on the Board of the National Fibromyalgia Association. The downside is that he speaks/presents a lot so it is hard to get in to see him. I made my appt in July. My next one is 11/22. He told me that someone telling him that they have Fibro is liking someone saying they have a fever. He can't just give the person with a fever tylenol and send them home. They might die because he didn't figure out WHAT was causing the fever. There are often underlying causes as to Fibro pain. Most people with FMS have other issues - like IBS, Restless leg syndrome, Migraines etc... (I happen to have those 3 things) If you treat those things then you can help reduce the Fibro pain some and make it easier to treat. He thinks there are too many unanswered questions with me and wants me to have some tests done. He is sending me for a sleep study, lab work and a special neck MRI. He said is goal will be to reduce my meds in the long run but is putting me on some more now. Sometimes things have to get messier before they get better. He put me on 2 new prescription meds and 2 OTC supplements and he took me off 1 of the meds I have been on.

10/06 follow up with the Neurologist. 1st time I have seen him since the MRI that showed I had an aneurysm. I don't particularly care for him but I can't really put my finger on it. He said I should see a neurosurgeon before the end of the year so they can start following me. Even though I have had MORE migraines since he doubled my topomax (migraine preventative med) he said to stay on it. He wrote me a scrip for a nasal migraine med to try and I am trying 2 new daily meds for a month to see if they might help with my daily chronic headache. He is calling it a "new daily headache". He even gave me a handout on new daily headaches. I asked why he called it that and he said because it just came out of the blue. I had explained on the last visit and on this visit that I have had a daily headache for the last 26 years. It goes in cycles though where sometimes it is worse for a month, maybe 2 but this time it has been bad since May - much longer than ever before. Is 26 years considered "new"?? I guess I just feel like he doesn't really listen to me.

I told him about Dr Wood and sounded like he was writing him off but Dr Wood sounds like he wants to try to help my migraines. OH and Dr Wood said to bring Kallyn in to him!!! Kallyn has seen the neurologist and did not like him at all so she is excited to see Dr Wood.

Today I see my MD because she is the one giving me my pain med and I have to see her every 3 months for a med check and fill out forms in order to be on the pain med. Now is a time that I really need to be at work and being dependable and all of a sudden I need to make all of these appointments and none of them are close to where I work so I need to be gone for 3-4 hours when I go. I just hate that.

I also hate deciding whether we want to have water and power or whether to pay our mortgage. We have paid almost half of our September mortgage and thought we were going to pay the other half when I got paid last Friday but 1) we got a disconnection notice for water 2) the PUD check bounced - twice. So that is $50 less we have right there. I reallllly hate that! *sigh*

It's taken me 5 hours to write this as I have been sneaking bits here and there while I work, I hope the grammar and spelling isn't too bad.