Thursday, May 12, 2011

May 12th is Fibromyalgia Awareness Day

Here is something I deal with quite often and it scares me.  It makes me feel like I am starting to get dementia or alzheimers and it scares my girls too.  It makes me feel stupid at work and it has a great deal to do with why I keep messing up at work.   I also put the symptoms of FM after it.

Fibrofog Have you forgotten where you put your keys again? Having trouble remembering what you were supposed to do this afternoon? Do you have difficulty finding the right words to use to express yourself? If you are experiencing some or all of these memory problems you may be suffering from fibrofog.


Fibrofog refers to a variety of cognitive impairments that fibromyalgia sufferers experience with the disorder. Fibrofog can be one of the most stressful and upsetting fibromyalgia symptoms. If you know someone with fibromyalgia syndrome or if you are suffering from the illness, keep an eye out for the indicators of fibrofog.

What is Fibrofog?
Fibrofog is a term given to the variety of cognitive problems that many fibromyalgia sufferers face during their illness. Fibrofog encompasses memory loss, difficulties using language, and difficulties with learning. These symptoms tend to descend in a haze or "fog," around the sufferer. Fibrofogs can occur at any time and can vary in intensity when they do occur. Fibrofogs tend to be at their most severe during flare ups in pain.

Fibrofog affects about both women and men who have fibromyalgia pain, though it tends to hit women more often. Women between the ages of 30 and 50 are most likely to be affected by fibrofog. Episodes of fibrofog typically last only a few days, though sometimes severe fibrofog can last for weeks or even months.

Symptoms of Fibrofog
Fibrofog is one of the most common yet unrecognized symptoms of fibromyalgia. If you have fibromyalgia signs and symptoms it is important to be aware of fibrofog so that you can seek appropriate treatment and manage your illness more effectively. Some symptoms of fibrofog include:

•short term memory loss

•difficulty remembering where you put things

•difficulty remembering plans

•difficulty with language, including trouble holding conversations, understanding conversations, and expressing thoughts (yes! and my response time in replying to someone is too long, sometimes the words do not come to me, sometimes my mind just goes blank and sometimes it just feels like it takes a long time to process what they said)


•difficulty finding the "right" word to use in conversation (yes)
•trouble remembering simple numbers
•transposing letters and numbers
trouble concentrating and focusing (yes! yes!)
•trouble retaining new information (yes!)

Causes of Fibrofog
The causes of memory loss and fibrofog are as yet undetermined; however, a number of factors could be at the root of these cognitive impairments. It is apparent that there is no real problem with the mental capacities of people suffering from fibrofog. Instead, there must be underlying problems that cause the brain to be unable to complete memory functions.

Sleep Deprivation: Sleep disorders are one of the primary fibromyalgia signs and symptoms. Lack of adequate sleep can affect the brain’s ability to produce enough of the neurochemical serotonin, which aids in laying down memory. (I take Ambien most night so I will go to sleep at a decent time)

Decreased Blood Flow: Studies show that fibromyalgia disability can cause decreased blood flow to certain areas of the brain responsible for creating short term memories. This lack of blood flow may prevent the brain from adequately creating new memories.

Chronic Pain: The chronic pain caused by fibromyalgia may actually inhibit the brain’s ability to create memories. Processing pain signals takes up a lot of the brain’s time and energy, especially in someone with fibromyalgia. This excessive pain may therefore reduce the amount of time the brain spends on trying to form new memories. Pain also produces large amounts of stress which can be one of the causes of short term memory loss. (Great, as if I didn't create enough of my own stress, my pain is creating stress too...)

Depression: A large percentage of people with fibromyalgia also report that they suffer from anxiety and depression. Depression and memory loss definitely seem to be linked. Depression lowers the levels of serotonin in the brain, preventing new memories from being laid down. Low levels of serotonin are also linked with learning difficulties. (I take medication for this)

Effects of Fibrofog on Fibromyalgia
Fibrofog tends to have negative effects on fibromyalgia symptoms and the course of the illness. Fibrofog can cause people with fibromyalgia to forget important self-care techniques including stretching and exercise. This can cause the pain of fibromyalgia to become worse. (I don't forget, I just don't have the eneryg.  Extreme fatigue is another symptom of Fibromyalgia)

In a recent study involving people with and without fibromyalgia, those with fibromyalgia reported more trouble with memory, concentration, mental confusion, and speaking. Patients with fibrofog also complained of more pain, increased fatigue, and more difficulty sleeping.

Symptoms of Fibromyalga

Chronic widespread body pain is the primary symptom of fibromyalgia. Most people with fibromyalgia also experience moderate to extreme fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, lupus and arthritis.

Pain
The pain of fibromyalgia is profound, chronic and widespread. It can migrate to all parts of the body and vary in intensity. FM pain has been described as stabbing and shooting pain and deep muscular aching, throbbing, and twitching. Neurological complaints such as numbness, tingling, and burning are often present and add to the discomfort of the patient. The severity of the pain and stiffness is often worse in the morning. Aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.

Fatigue
In today's world many people complain of fatigue; however, the fatigue of FM is much more than being tired after a particularly busy day or after a sleepless night. The fatigue of FM is an all-encompassing exhaustion that can interfere with occupational, personal, social or educational activities. Symptoms include profound exhaustion and poor stamina

Sleep problems
Many fibromyalgia patients have an associated sleep disorder that prevents them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the Stage 4 deep sleep of FM patients. During sleep, individuals with FM are constantly interrupted by bursts of awake-like brain activity, limiting the amount of time they spend in deep sleep.

Other symptoms/overlapping conditions
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud's Syndrome, neurological symptoms, and impaired coordination.

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