I had 3 Dr appts last week and I am going to share the news from yesterday's 1st because it was the best
My aneurysm is NOT DANGEROUS AT ALL - EVER!!! No matter how big it gets. It is in a vein outside of my brain. An aneurysm in your brain that bursts is what my kill you. An aneurysm like mine, being being where it i,s will make my right eye fat and blood shot and he said I may hear the blood pulsing in my eye. Then I would call him and he would decide whether to have a catheter inserted that would drain it or just let it reabsorb back into the blood stream on it's own. I go back in a year to have another MRI to see if there is any change. He wasn't even going to do that at first but he said he likes aneurysms to look like speed bumps, not balloons and of course mine is a balloon.
So back to earlier in the week now. MONDAY & TUESDAY were unremarkable. Must have been since I can't remember a thing about them except working, and the horrible, horrible pain I am having in my left buttocks & hip.
WEDNESDAY I saw the Fibro specialist and he also had good news for me!! (I look at it as good news, bad news) The pain has been getting work, the best way to describe it is a Charlie Horse in the middle of my left butt cheek, deep inside and it seems to be pressing on a nerve sometimes because I get sciatic like pain down my leg and sometimes the muscle in my butt spasms when I try to walk and I can't put pressure on my leg. Then there is my hip. The more I walk, the more it burns. It makes me think of a match that someone is trying to light - my hipbone, rubbing on a nerve. Anyways, the DR said it is Piriformes Syndrome. The Piriformes Muscle goes down your buttocks and the sciatic nerve runs through it. The piriformes can get inflamed and irritated and squeeze the sciatic. So what I feel is basically EXACTLY what is going on! So it is not just Fibro pain that I am stuck with like a I thought (good news) and Physical Therapy will help (bad news). I HATE PT. I can't afford PT. W/Fibro, it hurts for anyone to touch my body so just thought of PT, makes me have an anxiety attack. I just keep reminding myself that it will help. See driving and walking are the two things that really hurt it and my Fibro Dr is 30-45 min away. OUCH.
At noon I had a special neck MRI that the Fibro Dr asked for in Sept and insurance finally ok'd. It was supposed to take 40 min and it took 75. I had to lay perfectly still, flat on my back. I guess I kept twitching and they had to redo a couple tests. That is because laying flat on my back killed my back & butt. I couldn't help the twitching. I was dreading it for the noise and I actually drifted off a couple times!
Wed night Karli had her first real Choir concert performance. That was fun but when were leaving, Kallyn used the restroom and as she was coming out, another girl KICKED open the heavy bathroom door and it hit Kallyn in the head. She blacked out for a few seconds. She had already been dizzy and threw up right before the concert. She threw up as soon as we got home and spent the rest of the night dizzy and nauseous and has a lump on her forhead. I am pretty sure she got a minor concussion. She had a bad headache Thur & woke Fri w/ a migraine.
Oh, also Jake came over and cooked dinner. French toast, something the girls love. So we had a "family dinner" before Karli's concert and we talked about Christmas plans. We are going to do everything the same this year as we always have to make it easier for the girls. The dinner was very weird for me. Jake had asked me the previous Fri if he could make dinner Sun for the girls to show them that he and I are still friends. I told him I would let him know and then I never texted him back over the weekend. I called him Mon and suggested Wed. It seemed less weird to me for him to have it ready when I got home from work than for him to come over while I was home. He and I have been texting and/or talking almost everyday. There seems to be a reason w/our daughters or bills or Christmas.
THURSDAY I worked in our Tacoma office. whenever I do that, it means getting up almost an hour earlier so that I can leave the house at the same time I usually get up. It typically takes 90 min - 2 hrs to get there and 60-90 min to get home. While I am there I enjoy it as it is a "real" office and I work everyday in an airplane hangar - which is very informal and cool, but it is nice to play "real office" once in a while. I do not partically like the 3 people in the Tacoma office & could not/would not work there full time.
I left at 2:30 so that I could make sure I was in downtown Seattle & checked into the Sleep Disorder Dr's office by 4:00. I truly dislike going to that Dr office. I think the parking garage was built in the 20's when cars were much smaller. I feel like I have to hold my breath so the car will fit. You have walk a long ways. (after I have driven a long ways) as it turns out, this is the hospital that Kallyn is going to have her tonsils out at. (YUCK) He decided my sleeping pattern was much better. Ya, because I take ambien every night to knock myself out. He said good, keep doing it. So know I am going in for a sleep study on the 28th. I thought I would wake up and leave. NOPE. I stay for breakfast and lunch and possibly up until 5 while they ask me to try to take naps and see if I can fall asleep and how long it takes me if I do. I find this Dr. quite handsome and would probably do just about anything he said. sigh.
THEN, I had to do something for Karli that involved me going to Kmart in Shoreline, returning clothes and buying other clothes. THEN going to Kmart in Everett, returning half of what I bought in Shoreline (had to buy even though it wasn't right in case they didn't have the right stuff in Everett) and buying the rest of what I needed. All for a square dance competition at school. She organized buying all 8 outfits for everyone. More driving and walking. I cried on the way home from the pain. I got home at 8:30.
FRIDAY after the Neurosurgeon (in Kirland) I was supposed to a bank in Shoreline and a bank in Lynnwood for work. You know what? I. COULD. NOT. DO. IT. I could not sit in the car another minute. Much less another HOUR. Especially after the Dr did an exam and did some poking on my body. I was already crying again. I thought, I can go to Shoreline on Saturday. Lynnwood is not open Sat, but I thought I was just going home to put some heat on my body and rest & then I'd get up at 5 and go. (I didn't have to go back to actual work) I didn't do. I am a bad employee. I decided that the night deposit would work. The only drawback is that the deposit slip goes to my bosses home address. sigh. I will just tell him the truth. PAIN.
I rested until 8 and then I went and saw a friend that is visiting from Boise that I haven't seen in 2-3 years. There were supposed to be a bunch of other people from my high school there. And there were some, but not as many as I expected and not too many that I knew and Steve was so excited to see everyone that he as flitting all over the place so I didn't talk to him too much. We went to Big Daddy's WHS people go there all the time and I always have too much anxiety to go. Bobbie has invited people to go watch a friend of her play before too. Now that I have been maybe I will go back. Though I left at 11 because the music was too loud. It was throbbing in my head and you could not talk to anyone.
Tonight is Rah Rah night. I am excited to see my friends. We were just together at the Thock Party but it's different when there are more than just US there AND Bobbie and Jen were not there. I have seen Jen in EONS!!
I know the blog is long and probably a little boring as I do tend to go on... but I blogged.
So nice to have seen you Sat night, even though we barely talked. I seemed to have put my energy into Jen and Bobbi since long time no see. I hope with some of the changes you have recently made, that your body will gain strength and repair. I pray that good health will take over soon. Stay positive and hopefully you will be rewarded soon. Hugs. ~Deb
ReplyDeleteI like the long blogs it's a good way to catch up. gentle ((hug))
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